"Higher Maintenance stems from the often-used expression “high maintenance” which refers to someone who demands a lot of frivolous things, attention and care. I would say without malice that those of us living with a chronic illness are high maintenance (not out of a need for more) just to get by, taking care of a body that, at times, barely functions. Every day is a high maintenance day for us, and this soon becomes a heavy burden that affects all aspects of our existence.
This is why Higher Maintenance is so important! It is a way of life that involves a shift in perception and a new awareness of our selves and the world in which we live.
Higher Maintenance is the care of the heart and the soul so that we may find joy and peace in our day-to-day life. It is my profound wish that through my story and the few, very simple tools I share, you will discover your own unique ways to manage your dragon and your life."
The little video attached dates from 2016 just as I finished writing Higher Maintenance. I wanted to be one of the many voices out there bringing attention to ME/CFS and chronic illnesses in general. I needed to have a purpose and I like writing, so I went from there, to monthly blogs on coping and managing and growing as a person. I recorded the blogs for those who find reading more difficult.
Higher Maintenance has a long subtitle but is a short enough, simple read that relates my own story as if we were friends; it points out how I found ways to heal parts of my self and my life. I explain my journey from the lifelong perspective of a victim to an attitude of empowerment which was oddly enough, brought on by illness. Yes, illness is a mess of loss and sorrow but it also bears priceless gifts that can fill the heart with serenity and even allow joy to blossom within.
May my story help shed light on your unique path of healing. And beyond!